A mum with an agonising illness that causes her joints to dislocate is calling for the right to die.
As MPs debate assisted dying tomorrow, Jean Eveleigh, 42, fears her pain relief options will run out while her condition worsens.
Her rare degenerative syndrome affects con-nective tissues and could leave her using a machine to breathe and a tube to eat.
She told politicians: “At the moment you are forcing people to live in pain and suffering.”
The former disability coordinator gets 24-hour care for Ehlers Danlos Syndrome, which she said was like having multiple sclerosis and arthritis.
Jean takes enough pain relief each day to carry out six appendix removals and uses a wheelchair outside.
The mum of one – who wants the right to die when her condition worsens – will not be able to afford £10,000 to visit Switzerland’s Dignitas clinic and fears relatives could risk 14 years’ jail for assisting suicide if they aid her travel.
More than 155,000 have signed a petition by Dignity in Dying, who want assisted dying for those with less than six months to live.
But Jean, of Newham, East London, is being backed by campaigners My Death, My Decision, who say she would not be eligible. Instead she wants a review into assisted dying laws.
Trevor Moore, chairman of My Death, My Decision, said: “Jean’s story shows how broken our law is.
“People in England and Wales deserve the right to make choices at the end of their lives.”
Those opposed to assisted dying fear it could lead to people ending their lives out of fear of becoming a care burden.